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Contact tracing

The field of health informatics is rather large and EpiConcept has created many different information systems. We have selected a few of them that represent certain categories of information systems.

Information systems concerning investigations of cases of disease allows one to make the correct connections between different patients. This allows the follow up of an index patient who has an infectious disease and the people he or she has had contact with.

The Damoc tuberculosis application

The Damoc application’s main goal is to track tuberculoses index cases and their contacts which are identified by follow-up teams investigation the case. For reasons of public health, having one single patient database allowing investigators to rapidly know the history of a person is indispensible. The goal of this application is to be able to enter the follow-up information about a person and indicate which situation(s) he or she is known by the screening centre. Thus, if a name shows up years later, it is possible to access his or her previous files as well as be able to see that this person is currently being followed up through another investigation.

Technology

The application is based on Voozanoo 3.4.2. The technical particularity of Damoc is that an index case can also be a contact of someone else, or a contact could turn into an index case. A custom module was created to automate the mailings (printed letters) to individuals to request them to visit the centre at programmed screening dates. Another custom module was created to manage a catalogue of specific statistics which include parts of the activity report for the anti-tuberculosis centres.

Organisation

This collaborative project is aided by the organisation of a users group. Twice per year, approximately thirty people gather together (one or two persons from each anti-tuberculosis centre) for a day to exchange ideas and best practices and to agree upon the priorities for the next set of functions desired for the application.

Collaboration

The use a mailing list has been successful in allowing for the community of users to ask questions or give advice throughout the year. A dedicated address for internal ticketing also allows each centre to send practical questions to be answered by EpiConcept.

Advantages

The advantage of this system resides in the individual patient follow-up. To be able to know at any moment what kind of examination (even for previous years) or follow-up the patient has already had, allows each centre to save time in better adapting the patient’s follow-up programme as well as limiting the risks of contagion or transmission.  

Voozanoo standard / custom development: 75/25

As stated above, there were two significant custom modules that were added to the application. The basic emailing system and an data analysis module's basic functionalities were not sufficient for this project. The standard Voozanoo was used to create approximately ¾ of the application while ¼ of it was customised development.

Other EpiConcept Voozanoo projects

“Phare” application chosen by Proche network

The Regional University Hospital Center in Lille, France has chosen to impliment EpiConcept’s Phare information system for people with hereditary predispositions to cancer. Phare is a software application to register and follow up patients with a hereditary risk to cancer and to manage their personalised treatment plan. Phare is based on Voozanoo 3.


The National Reference Center for Cytomegalovirus to use Voozanoo

As part of the Cytomegalovirus (CMV) epidemiological surveillance effort in France, the National Reference Center for CMV has chosen EpiConcept’s Voozanoo platform to collect infection declaration questionnaires.


NS-Park database - Information system for Parkinson’s patient follow-up

The goal of this project is to create a patient follow-up system for the 25 expert centers in the French national clinical research network on Parkinson’s disease (NS-Park, FCRIN). The application is used as a centralised information system for medical personnel.


Myology Institute begins new study using Voozanoo

The Myology Institute is creating a natural history prospective study of 70 patients infected with spinal amyotrophy type 2 and 3. This study is coordinated by Dr. Laurent Servais. It is a multicentric study involving nine centres in three countries (France, Germany, Belgium).


Overhaul of the Revala 13 observatory database

The REVELA 13 observatory is a surveillance programme for kidney, bladder and acute Leukaemia cancers in the Bouches-du-Rhône department of France. It is upgrading its Voozanoo information system to a relational database with geographic metadata.


Creation of a questionnaire platform for the “Constances” cohort

EpiConcept has put in place a Voozanoo platform for collecting information from the participants of the Constances cohort (www.constances.fr). This platform allows the cohort management team to create their own questionnaires.


Information system for fighting malaria in Thailand and Myanmar

The Shoklo Malaria Research Unit had created its own information system in 2014 using the publicly available Voozanoo portal and have since contracted EpiConcept to put in place new capabilities. This information system for fighting malaria is used in Thailand and Myanmar.


E4N, a large epidemiological study on families to use Voozanoo

Inserm’s Unit 1018 team 9 “Nutrition, hormones and women’s health” has chosen EpiConcept to put in place its data collection platform for their extensive E4N study. The E4N public web site can be found at https://e4n.fr.